Quick Fibro Update

Medicine - Lyrica has been raised to 150 mg twice a day.... Loritab is being prescribed for pain until I can see the pain specialist.

Physical Therapy - Starts Feb 1.

Acupunture - Still not scheduled

Pain Specialist - After tons of red tape and pushing over the phone, Bill finally got TriWest to do their job. I will be seeing the Pain Doctor this coming Tuesday at 6 am.

Dentist - the day before the pain specialist for two fillings... go figure!

Ryan's Belated Birthday Party

Although Ryan's invitation stated that his party was to start at 1 pm.... at 10 am, before we had even gotten the cake, there was a very loud bang, followed by ringing at the door. Opening the door we see this very tall, skinny soon to be 13 year old and all his gear.

"Hi Mark... are you hear to drop off your stuff for later?"

"No the party starts at 10!"
"No it doesn't."
"Yes it does, I saw it on the paper."
"umm no it said the party ends at 10 am the next day."

The argument continues, until I produce an invitation...
"oh, I only read the last thing. Should I go home?"

Of course we didn't send him home. Ryan had already prepared the game room, so everything was ready. Mark felt bad, but we cheered him up!

Bill came home and we ran to find goal posts for the cake. (Baskin Robbins didn't carry them, even though they were on the picture). We grabbed those, grabbed the cake (I grabbed a vente) and headed home.

Just a few minutes before 1 pm, we had our next guest, Alex. He looked happy to be here and ready to hang out with the guys. Shortly after, Conner arrived... the gang was all here, it was time to get the party started...

Bill loaded the young men into the jeep and took them to play lazer tag. From my understanding they were all on the same team, playing against two other teams. The first time, they lost.... the second time they won, and Alex was 1st place over all three teams (38) people, including adults... bet you are proud William H.

The guys came home a little sooner that I had expected, but that was okay.. We sat down and opened gifts. I heard the following conversation...

"I brought a gift, you only brought a card?"
"Yeah but that's a thick envelope, anything could be in there."
"Not anything!"
"Maybe it's a huge wad of cash!"
"Oh that would be cool."

The first present Ryan opened was from Alex. Ryan read the card and then dug into the bag. Chargers calendar... how did Alex know??? Wait dig deeper, "Oh Yeah!" it's a Chargers hat! Ryan was in heaven!!!

Next Ryan opened his card from Connor.... "Oh man, it's a WAD of CASH!" "EVERYONE STAY AWAY FROM MY WAD OF CASH!"

Ryan then opened his card from Mom & Dad which played Mr. Roboto, one of Ryan's favorite songs. He already got his Bday gift from Mom & Dad in November, but he got a Chargers shot glass as an extra.

Then Ryan opened his gift from Mark... LEGOS!!! Oh yeah, you can't go wrong with Legos. The guys seemed interested in getting that box opened as soon as possible.

However, it was time for the cake. We didn't sing Happy Birthday, we just dug in and had Rootbeer with it. Conversation was had, tummies full, ready for games.

Wait, what's going on? Loud noises? From 11-12 year old boys? No Way! They are full of energy? You would think they just had a ton of sugar! Put video games on hold... you guys are going to the park! With Basketball and football in hand they were off to the park.

10 - 15 minutes later, I hear bouncing and lots of loud chatter. The door flies open. Well that was short lived... they were back to play video games.

Nope now they want to play torture each other in a small room with nerf guns... LOL! They calm down and start playing video games...

Every 10 minutes Connor comes to visit us in the living room/den/kitchen... "Connor are you bored?" "No, I'm having fun"

A little bit later we hear....
"Let's go play in your backyard"
"We don't have a backyard"
"Well let's play in the front yard"
"I don't want to play outside."
"Yeah let's play outside"
"It's getting dark"
"Ask your parents if we can play outside"
"You're the one who wants to go outside, you ask"
"Mr. Bill can we play out in the front yard?"
"Yes only in the yard."
"Let's go, your Dad said we could play in the front yard."
"In the front yard? Really?" (we have never allowed Ryan to play in the front yard without an adult outside)

3 minutes later, it gets real quiet... I peek out the window... I see two boys throwing something into the street as cars are passing by, one child looking deep into a bush, and another one kicking the bush.

"What are you guys throwing at cars?"
"Berries"
"What are you doing?"
"We can't find the football"

Mr. Bill to the rescue... it's dark out, he brings the flashlight.... reason for kicking the bush... needed to get the football out the bush has those prickly things... (kicking the bush bring the ball out, how?)

Back into the house where, they just start the game and Pizza arrives! A discussion arises in the game room about whether that was Papa Johns, Pizza Hut etc. For the record... Papa Johns! The boys scarf down pizza and settle into the room for some gaming.

A little later a snow white Mark comes out asking for Tylenol. He has a headache and is going to throw up. We offer him to go home, he refuses. He looks like a ghost, but instead lays on the bed as the boys play. He refuses to go home. A call goes out to Dad, but Dad is okay if he stays if we are. Mark falls asleep, but is off limits, because he is sick. (This is very important later!)

Bill and I decide to watch our netflix, thinking the boys will remain in the gaming room & Ryan's room. We watch Gallagher and Robin Williams stand up... We are visited by Connor every 5 - 10 minutes, for water, to see what is happening, for water, was going to the bathroom and just walked in... We had to keep pausing the videos everytime he walked in the dining room because of the swearing and content.

Bill finally gave up, allowed water to be in the rooms and pretty much roped the boys off into the area before the dining room. LOL!

Then it happened... a very pink and healthy Mark arrived in the living room. "Miss Cyndi, do you have makeup? All the guys are asleep but me." The nap had done him well and he was looking and feeling good. I handed him my theatre makeup and he was off.

Alex got the worse and slept through it. Connor and Ryan woke up when Mark tried to prank them.

The boys took turns falling asleep and waking up all night/morning long.

In the morning Bill left for work and told me all the boys were awake. Every 5 minutes they got louder... what are they arguing about?

"No I was only asleep for 2 hours tops"
"Yeah well I watched you fall alseep all night"
"I was the first one to wake up this morning"
"Well I didn't sleep all night"
"I only slept for an hour"
"Nuh uh, you slept longer than that"

1/2 hour later I decided to tell them that there are like 5 different kinds of breakfast on the table and parents are on there way to pick them up.

10 minutes later, they finally decided to eat, and I hear this...

"We should do this again, all together..."
"Like today... let's do it again today"
(from Cyndi) "But not in this house!"
::giggles::
"Connor, lets do it at your house."
"no"
"Let's do it at Alex's house."
"hey he didn't say no!"
"you know what would be funny... if we all just showed up at his house later today with our stuff."

Alex's dad arrived and Alex and Connor left. Mark will be taken home after I write this blog and post pictures.

The boys had a blast. Check my pictures (on myspace) for Ryan's Party photo album for all the pics, including Alex with makeup!

Update on Health - January 2, 2008

So, I thought I would get everyone caught up with what's going on...

The Lyrica I am on doesn't seem to have bad side effects. I haven't really noticed any yet... but I haven't been on it for a month yet. We are noticing that I'm not dizzy like I was on the neurotin. I still don't have a "pain" medicine for the bad days. I refused to take the Mobic, but the doctor did not offer anything else.

Bill did a lot of calling for me today. He made an appointment for me for physical therapy for Feb 1, 2008, that's the earliest they can get me in.

Then he called to see if my referral for the pain clinic went in, it did. It was denied and given to TriWest stating I needed to see an out in town doctor. Bill called TriWest, they had the referral... Bill called the doctor.. they are not taking any new TriWest patients. So he called Tri West back... they told him to go on to the Tri West website and find a doctor and see if they are taking new patients, if so, then to call them back. So Bill search and finally found a doctor who would take me. The doctors office would not make an appointment for me though, without the referral.

Bill called TriWest back and gave them the doctors name and fax number. Nope, they couldn't use that fax number, they have to use the one on file. So TriWest has to fax the referral to the doctors office. Bill called the doctors office back and asked about the fax number and they said it was okay. They said they would call us, as soon as they got the referral via fax. They never called back today!

Also, we won't be able to talk to the acupunture clinic until after Bill gets back from Poland, which means, I probably won't have my first appointment until March!

So things are moving slowly... but I am upset, because no one has given me any suggestions on how to handle the bad pain until I start going to these appointments (at least a month away).

It's been 5 months of me begging this doctor to help me with my bad days and Feb 1 it will be 6 months. How do you let a patient deal with bad pain for 6 months?? How can you keep saying, well once you get acupuncture... ::sigh::

I'm glad I have the appointment for Feb 1, but I feel that it's too late to be grateful to the doctor for it, ya know!

Keep me in your prayers!

Cyndi